Patient Advocacy

Prenatal Genetic Testing

 

Patient Advocacy Groups

 



NADS

National Association for Down Syndrome

http://www.nads.org/


NDSS

National Down Syndrome Society

http://www.ndss.org/


NDSC

National Down Syndrome Congress

http://www.ndsccenter.org/


IMDSA

International Mosaic Down Syndrome Association

http://www.imdsa.org/


site-logo

Trisomy 18 Foundation

www.trisomy18.org


Chromosome18

Chromosome 18 Registry and Research Society

www.chromosome18.org


soft

SOFT (Support for Trisomy 13/18)

www.trisomy.org


TSS

The Turner Syndrome Society of the United States

turnersyndrome.org



the-focus-foundation

The Focus Foundation

thefocusfoundation.org



download_asset

The International 22q11.2 Foundation Inc.

http://www.22q.org/


Genetic Carrier Screening

 

Patient Advocacy Groups

 


 

brighter-tomorrows

Sickle Cell Disease Association of America, Inc.

www.sicklecelldisease.org/index.cfm?page=about-scd


jewish-genetic

Jewish Genetic Disease Consortium

http://www.jewishgeneticdiseases.org/



ghr

Genetics Home Reference

https://ghr.nlm.nih.gov/


nih

National Human Genome Research Institute

https://www.genome.gov/



cooleys-footer-logo

Cooley’s Anemia Foundation

http://www.thalassemia.org/


mayologo

Mayo Clinic

www.mayoclinic.org


Cystic Fibrosis Foundation

https://www.cff.org/


ViewEdoc

National Tay-Sachs & Allied Diseases Association

www.tay-sachs.org/taysachs_disease.php


The-cure-tay-sachs

The Cure Tay-Sachs Foundation

www.curetay-sachs.org/about.shtml


FRAXA Research Foundation

www.fraxa.org/


Hereditary Cancer

 

Patient Advocacy Groups

 


 

force

Facing Our Risk of Cancer Empowered

http://www.facingourrisk.org/index.php


we-can

Women’s Empowerment Cancer Advocacy Network

http://www.womenscanceradvocacy.net/en.html


susan-g-komen

Susan Komen

http://ww5.komen.org/


alamo-bcf

Alamo Breast Cancer Foundation

http://www.alamobreastcancer.org/resources/



men-against-cancer

Men Against Breast Cancer

http://www.menagainstbreastcancer.org/



mbcn

Metastatic Breast Cancer Network

http://mbcn.org/



mbcc

The Male Breast Cancer Coalition

http://malebreastcancercoalition.org/



ysc

Young Survival Coalition

https://www.youngsurvival.org/



acs

American Cancer Society

http://www.cancer.org/


nih

National Cancer Institute

http://www.cancer.gov/


cancer-support

Cancer Support Community

http://www.cancersupportcommunity.org/


living-beyond

Living Beyond Breast Cancer

http://www.lbbc.org/


nocc

National Ovarian Cancer Coalition

http://www.ovarian.org/


abcd

After Breast Cancer Diagnosis

http://www.afterbreastcancerdiagnosis.com/


acos

Breast Cancer Advocacy Organizations